Back from the hematologist again. Results say I don't have APS. What the hell?
Negative for lupus anticoagulant.
Negative for anti nuclear antibody.
Negative for factor 5 leiden.
Negative for anticardiolipin antibody.
But I am positive for one copy of the C677T mutation and one copy of the A1298C mutation for MTHFR.
He said, based on these results, I don't need to take low dose aspirin, and I don't need lovenox. But that I do need 4-5 mg of folic acid because of the MTHFR (I think, sometimes it's hard to keep it all straight and my hubby didn't come with me to help me listen and remember everything).
I sent an email to my OBGYN to let him know and see what he thought of the whole thing.
Regarding the fertility clinic, the only interesting and slightly new information I got was about "intralipid". I haven't found out much about it online so I asked my OBGYN about that too. My hematologist thought that might be a good idea. He thought I should check with my OBGYN before changing anything I'm doing as well. Hopefully he'll email me back soon, or maybe I'll see him in the office on Friday.
This is all so weird. Why does pregnancy have to be so mysterious? Why was Isabella so small for 19 weeks if not for APS? Obviously the aspirin and lovenox hasn't helped any and Sean and Samantha as well as Isabella all had normal chromosomes so what went wrong?
I don't understand.
I don't know what to do.
6 years ago

2 comments:
I'm sorry you're going through this. Confusing messages makes it all so much more difficult. I've had conflicting advice from REs, too (so it's not just yours).
(((HUGS)))
Hang in there, I know it is hard. I am going through testing as well.
Post a Comment